CRPS or RSD

Thanks Debs. I hadn't thought of printing off everything. It's like a diary of events. It will make things much easier to explain. I managed to give my fella a half hug

I'm seeing my GP at the end of the month. He's a good guy too and has tried his best to help me. Just think I hit a metophorical brick wall with the pain consultant. There are more out there who can help. I sat and thought about it. I don't want someone choosing a way of life for me because they were uninterested.

Think it's time to get my arse kicking boots out of the wardrobe ;D

Way to go girl.I used mine yesterday damn does it feel good ;)
Always here

>(*v*)< Lol xxx

Oh gosh honey, I'm sorry to hear that things are getting worse. I think part of the depression is brought on by those type of ignorant people. It's understandable to be more frustrated at ignorant nurses and doctors as they are meant to be very knowledgeable people!! I can't believe you are having to emotionally fight with these people when your condition is draining you mentally and physically... it's an outrage.

But it's nice to hear that you've still got that fighting spirit in you.

Essex Debs is right, it would be a lot easier for you to print this off as if this is a diary of your condition!! Not only that but all people's suggestions are to hand so if you wanted to try something new that someone has suggested you have it right there. If that makes sense??

I hope there is something that can be done for you *fingers crossed*

Oh gosh honey, I'm sorry to hear that things are getting worse. I think part of the depression is brought on by those type of ignorant people. It's understandable to be more frustrated at ignorant nurses and doctors as they are meant to be very knowledgeable people!! I can't believe you are having to emotionally fight with these people when your condition is draining you mentally and physically... it's an outrage.

But it's nice to hear that you've still got that fighting spirit in you.

Essex Debs is right, it would be a lot easier for you to print this off as if this is a diary of your condition!! Not only that but all people's suggestions are to hand so if you wanted to try something new that someone has suggested you have it right there. If that makes sense??

I hope there is something that can be done for you *fingers crossed*

Thanks Becca. I have only had problems with the pain management consultant. He was really arrogant and didn't explain how he got to his conclusions. His parting shot was that I was entitled to a second opinion.

All the other people I have seen have been supportive and given me positive things to do and listened to me to get to really know what is going on.

My GP and physio have been really considerate. The main problem is that I need pain control to be able to do the physio. An increase in movement will help the pain. But I have pain that is restricting me....erm....catch 22.

The nerve blocks were supposed to reduce the pain so I could strengthen my arm muscles and get more mobility. It is a very big part of the treatment that has been refused for me without explanation.

I'm not sure if he knew how to treat me...maybe that's why he put the blame on my mental state and said he is refering me to a pain group to learn how to live with it. Yep I know that's contradictory....it got me too.

There's always something that can be done. It depends on how much the NHS is willing to spend on me....**tongue very firmly in cheek**

The thing is that if I can get some level of pain control I will be able to work, maybe reduced hours but I won't be stuck at home. It will cost less to help me as I will be paying my way so it really doesn't make economic sense not to help me. Plus day time TV is dire.....Lol

Gosh honey that's awful to be stuck in that catch 22.

Daytime TV is dire... I've had 8 months of it thus far and it's driving me nuts!! Hopefully a friend of my mums is going to try and get me 6 months work experience at the place she works in Stratford. If she's unable to do so then I will seriously be considering going back to college or something.

Hmmm I wonder why they refused you that form of treatment?? So are you still being given the option of physio?? Hopefully they will offer you another method of pain control, surely they can't leave you in the pain you're in...

Hi Lolly....I record night time programs now so I can watch them during the day. It's saved some of my sanity ;D I hope things go your way for the job experience. It's so hard for younger people to get work with so many going for so few jobs. Good luck x

I'm going back to my GP to talk with him about finding a way to reduce my pain. I have now got a Occupational Therapist as well. She is really supportive too. I still go to physiotherapy every week and do hydrotherapy in a local pool that has disability access and is warmer than other pools.

CRPS is a complex condition as there are 3 stages. People can show signs of a later stage while being in the earlier stages. I'm not sure but I think the pain consultant thought I was at the chronic stage where further treatment would be useless. That's why I was so upset. He was writing me off as a lost case after seeing me twice.

I'm more of the opinion that I can get more movement back if the pain is managed. My physio is encouraging me to exercise and we have made great improvements working together but the pain isn't managed enough for further improvement. She also has seen my condition deteriorate from a mobility and emotional point of view. She believes I'm doing the right things as does the Occupational Therapist.

Think I was just unlucky that the pain specialist didn't communicate his opinions and how he reached them. So I will ask for a second opinion.

I saw works Occupational therapist as well. It was a good meeting as she is really caring and empathetic. I have been classed under the Disability Discrimination Act....it's got a new name but I cannot remember it...darn my fluffy head. It was important for me to be classified under DDA as now I can ask for more help and assistance with other things. It was strange thinking of myself in that way. I'm the one who has spent a life time helping others.